Why this blog?

It is a substantial decision I take when I start this blog, making my own situation a public matter. But I believe to be frank and open-minded as superior to the opposite. Of course I hope to aquire certain advantages from this blog mysef, why would I care to invent it if not!?

First and foremost my ambition is that this will be a place to share thoughts, despair, frustration, yes; anything u or I find of relevance to include. To reach as many as possible I find it necessary to edit this part in English.

Also I do not deny that I would like to produce some fiction where a character suffering from Parkinson will be central, and I will as time goes by probably share thoughts on this baby to be, as well as try out passages on you. This part will have to be in Norwegian as I do not master English well enough to write stories.

torsdag 20. februar 2014

Drugs

Yes, in order to function at all, I am heavily drugged, which is a problem in itself, as everybody surely knows. The operation will take away the need for most of these drugs, which is a reason in itself that I am looking forward to it.

I start the day (normally between 05.00 and 06.00) with a main dose of drugs, first a Sifrol 3,15 mg that lasts the whole day. Indeed this has  a really long term effect as I have been informed to stop taking it a week before the operation takes place. The most serious side effect I have from the drugs comes from this, the experts say. In truth this is so big and difficult that I need to tell you about it later, hopefully before the operation.

My second  'main course' is Stalevo, starting with a unit containing 150 mg levodopa and following up throughout the day with units of  100 mg. These burn out very quickly, so to avoid a backslash I must have a new one at least  every hour, giving me a daily dose far above the maximum recommended. I do not know much about side effects here, except for the probably innocent dark yellow it gives my pee.

My pre morning 'meal' ends with a 10 mg Eldepryl,  said to give a positive effect on the devlopment of the sickness. After that its a question of time, it takes at least an hour before the effect kicks in..If you know something of interest related to these drugs, please comment.


tirsdag 18. februar 2014

Operation ahead!

I have, eventually, received a date when they plan to operate me at Rikshospitalet in  Oslo( I live in Bergen).The date is April 2nd, ie it was 50 days yesterday, seven weeks exactly today. If you wonder, this is my main concern at the moment, not even the heroic fight by all the Norwegian olympic participants concerns me more.

I will try to express thoughts and feelings, indeed even facts, around this operation for the following weeks. If you think there is not much coming from me on a daily basis, it surely has to do with my sickness again; most days I am quite influenced by it and it is difficult to do almost everything. The author J.M. Coetzee has, to my knowledge, Parkinson himself and in a novel from 2005 we meet the main character Paul Rymant who is trying to lead a meaningful  life despite the decease. The book has a title that points to one of the key
problems threatening his ambition: Slow Man.,  You can find a review of this book in my former blog thauke2read.blogspot.no