Why this blog?

It is a substantial decision I take when I start this blog, making my own situation a public matter. But I believe to be frank and open-minded as superior to the opposite. Of course I hope to aquire certain advantages from this blog mysef, why would I care to invent it if not!?

First and foremost my ambition is that this will be a place to share thoughts, despair, frustration, yes; anything u or I find of relevance to include. To reach as many as possible I find it necessary to edit this part in English.

Also I do not deny that I would like to produce some fiction where a character suffering from Parkinson will be central, and I will as time goes by probably share thoughts on this baby to be, as well as try out passages on you. This part will have to be in Norwegian as I do not master English well enough to write stories.

mandag 6. juli 2015

>The news that I had not been turned on was a schock as well as a relief. Five miutes later I was a functioning human bbeeing again, not only a shadow of what may have been.

Now I had some great weeks and months ahead. I even went on holiday to Milan together with my 13 year old daughter, which was great, even though we never got our luggage  (before the morning we were going home!) and it was rather hot all the time.

During summer, my status as a patient was also moved from Rikshospitalet to Haukeland.

søndag 14. juni 2015

After 14 months I start to feel like a human being again...

Its been a long time without me posting anything on this blog.. but now I will try to get across a rather short summary about what has taken place since I indeed went through the deep brain surgery on April 2 2014.

The operation itself was a success, at least thats what was said afterwards and what I must believe of course. Exhausting it was; probably the fact that it takes about 8 hours will see to that in itself. I had a bad experience at the post operation unit, but I do not believe I can say much about it as I was heavily drugged at the time.

After approximately 1 week I was feeling fit enough to go home. And coming home was probably so welcoming in itself that I felt much better  than I really was.  Anyway one of the first days after coming home I crashed my car. You may find it strange that I was driving at all at the time, but I as I felt great compared to some weeks earlier and NOBODY had said a word about avoiding it , I did not regard it as a problem. Luckily, I only drove my car into another car waiting for a green light and at such low speed that it only resulted in minor damages on the cars.

Then the true problems occured.  Day by day I felt weaker and generally out of shape and having some bad dreams at night; being convinced that the house I stayed in was about to burn down.. This led to at least one new stay at my local hospital (Haukeland). Several doctors checked me but nobody found anything to be wrong. After some more time without any improvement, my regular doctor managed to get me back at Rikshospitalet where I of course was operated. The day after my return there they told me that apparently the power regulating the sensors in my brain had not been turned on after the operation, so that the good feeling I had in the beginning was  a sort of placebo effect and at the same  time making it very understandable why I had not been functioning well after some weeks (This took place approximately four weeks after the operation).

(To be continued)