Why this blog?

It is a substantial decision I take when I start this blog, making my own situation a public matter. But I believe to be frank and open-minded as superior to the opposite. Of course I hope to aquire certain advantages from this blog mysef, why would I care to invent it if not!?

First and foremost my ambition is that this will be a place to share thoughts, despair, frustration, yes; anything u or I find of relevance to include. To reach as many as possible I find it necessary to edit this part in English.

Also I do not deny that I would like to produce some fiction where a character suffering from Parkinson will be central, and I will as time goes by probably share thoughts on this baby to be, as well as try out passages on you. This part will have to be in Norwegian as I do not master English well enough to write stories.

torsdag 20. februar 2014

Drugs

Yes, in order to function at all, I am heavily drugged, which is a problem in itself, as everybody surely knows. The operation will take away the need for most of these drugs, which is a reason in itself that I am looking forward to it.

I start the day (normally between 05.00 and 06.00) with a main dose of drugs, first a Sifrol 3,15 mg that lasts the whole day. Indeed this has  a really long term effect as I have been informed to stop taking it a week before the operation takes place. The most serious side effect I have from the drugs comes from this, the experts say. In truth this is so big and difficult that I need to tell you about it later, hopefully before the operation.

My second  'main course' is Stalevo, starting with a unit containing 150 mg levodopa and following up throughout the day with units of  100 mg. These burn out very quickly, so to avoid a backslash I must have a new one at least  every hour, giving me a daily dose far above the maximum recommended. I do not know much about side effects here, except for the probably innocent dark yellow it gives my pee.

My pre morning 'meal' ends with a 10 mg Eldepryl,  said to give a positive effect on the devlopment of the sickness. After that its a question of time, it takes at least an hour before the effect kicks in..If you know something of interest related to these drugs, please comment.


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